Well I guess I should be updating about what has been going on the last two days. Sorry about all of the posts being about the baby, but not much else is going on, and I'm kind of using this as a journal so I won't forget. So on Monday we had one an appointment with the perinatologist at EIRMC for just one of our, now routine, check-ups. It was a teleconference so he was not actually in IF, but we can talk through the TV to him. The tech starts scanning and Dr. Belfort tells her to talk a circumference of the baby's heart and one of his chest. He then tells us that the baby's heart is talking up 75% of his chest where when we went down to Primary's last it was only 50-55% (still bigger than normal but they are expecting that, due to his other heart problems.) So he asks us when we were suppose to go down again, and when we told him we had an appointment for next Wednesday he told us he wanted us to go down tomorrow. He called one of the cardiologist to let them know, and then also sent us down to the lab to have my blood drawn. (Oh yea while he was talking to the cardiologist while we were in the room he made it sound like we might be delivering when we went down there and was wanting to start me on steroid for the baby's lungs.)He said he saw some calcification deposits in the baby's bowl so he wanted to check for Cystic Fibrosis (We still don't have the results back yet.) So then yesterday we made another day trip down to Salt Lake to Primary's, and after much scanning the cardiologist came in to talk to us. He said that they are only seeing an increase to about 60%, (not 75%) and that as long as his heart is functioning "well" and his output is good that they aren't AS worried that his heart is a little bigger than it should be, but that they are going to continue to monitor him very closely. So in other words starting about the first of July I am going to be alternating weeks seeing Dr. Belfort one week and the cardiologist in Utah the next for basically the rest of my pregnancy unless there is some MAJOR improvements. It also means that we are going to be delivering at the University of Utah. They want us to come down at about 35-36 weeks to stay, then we will be seeing a perinatologist there which will be the doctor who actually delivers the baby. They said that she will probably induce me at 38-39 weeks. The whole reason why they want us deliver down there is that this is not something that any of them have ever seen before so they are not sure what is going to happen. There is still a chance that his extra vein will just go away on it's own after he is born and there will be no problems, but if it doesn't then he will have to have surgery. So instead of taking the chance that he would have to be life flighted they decided to just have us deliver down there. They also changed their minds and are now saying the the extra vein he has is comming into his left atrium, not right.
As we are walking out of the hospital Jason says "I'm really getting tired of these fire drills." Me too. I almost don't want to go back to Dr. Belfort. Almost every time we see him he scares us to death and immediately sends us to Utah. We know that it is something that they really don't know anything about so they are being extra cautious, which we do appreciate, but I don't think that either one of us can take much more of the "Fire drills". Anyways sorry this is so long and probably really boring to everyone, but like I said, it's more for me to remember what happen so too bad. ;)
Wednesday, June 17, 2009
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Goodness, guys, you are dealing with a bunch of emotions. Just remember, you have family that loves you all over Utah and would be willing (and happy) to have you set up 'camp' with us. Sweet Baby James (sorry for the James Taylor humming I'm doing) will be okay and that little heart will be in great shape. We love you so much! You will all continue to be in our prayers.
Tell Dr. Belfort that he needs to have his own teleconference with the U of U every time, before he freaks you guys out. SHEESH!
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